cynaNMbeader's blog

Within such a discrete forum there lies a pit-fall: people with fibromyalgia don’t have enough energy to consistantly ‘blog’. It’s a good day if I’m out of my ‘jammies. It’s a really good day if I wear regular shoes instead of my normal comfy clogs. I have to make choices on how to distribute my energy while it lasts–if I am up and dressed, that may be it for the day. I can either bead or get on the computer for a little while–computer crashes me more often since I spend hours reading and responding to back-logged mail.

Thanks for the comments–they really helped and made me laugh, too, always my favorite therapy along with beads. And music, if I’m beading. This last flare has been one of the nastier since spring, so sorry I ranted! But thanks to you, I feel less an undiscovered, invisible alien life-form.

We get marginalised without realising it, I guess–in fibrofog (and I have such a racket going on in my head from tinnitis), things pass right over, people talk about me, or at me, but not with me. I’m having a lexdysia day, takes me 20 minutes to edit half-paragraphs! Later, pals!:)

Television ads chirp merrily about how fibromyalgia symptoms may appear “flu-like” –yeah, right. Try “rigour-mortis without the benefit of death”, that’s a lot closer to reality for some of us. Personally, I wake up mornings feeling like: a) I’ve been run over by a speeding F150; b) I’ve been run over by a speeding F-150 which has backed up and parked on me; c) I have been run over by an 18-wheeler; d) I’ve been run over by a loaded cement truck and it has parked on me. And it’s not much better when I get up.

Not a bleeding thing–too tired, not enough beading. Somebody throw me a quill. Hold the vellum (unless it is *recycled* lambskin or bunnyskin or whatever the hell it’s made of)–actually, I think I’d rather go with a stylus and clay tablet, thank you. Cuneiform, that’s the ticket.